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You are here: Home / Archives for daughter

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Figuring Out Life Hacks as a Disabled Parent

May 25, 2016 by Ellen Ladau 3 Comments

Figuring Out Life Hacks as a Disabled Parent

In 1991, my husband Marc and I brought our newborn baby girl home when she was 9 days old. At the time, we lived in an apartment with several steps to enter.  This was just the first of many challenges I had to navigate as a disabled parent. I was born with Larsen’s Syndrome (LS), […]

Filed Under: Disabled Parenting Tagged With: accessibility, adapting, adult child, daughter, disabled child, disabled mom

Making it Work: Caring for an Infant as a Mom with SMA

May 2, 2016 by Lauren 2 Comments

Making it Work: Caring for an Infant as a Mom with SMA

I certainly thought I knew myself as a parent, before I was one (ha!), better than I did. This has by far been the greatest, best, most difficult and even most anxious time of my life as a settle in. My current anxiety is about Gia becoming mobile. I already have help and am never […]

Filed Under: Disabled Parenting Tagged With: baby, daughter, disabled mom, infant, muscular dystrophy, wheelchair

Diving in, Wheelchair First

April 19, 2016 by Lauren 1 Comment

Diving in, Wheelchair First

Dreaming of becoming a parent chooses you. You don’t get to choose the journey. With Spinal Muscular Atrophy (SMA) and using a power wheelchair while requiring care for my basic needs, many would think being a parent wouldn’t be a dream I’d have, let alone pursue. I am a mother to a nearly 5 month-old […]

Filed Under: Disabled Parenting Tagged With: adapting, baby, daughter, disabled mom, muscular dystrophy, surrogacy, wheelchair

Reflections From Parenting With a Disability

March 22, 2016 by Heather Watkins 1 Comment

Reflections From Parenting With a Disability

On a recent visit to the doc’s office that coincided same week my daughter returned to school, I welcomed verbiage bestowed upon me that included the following: “You lost 2 lbs, you have such white teeth, you don’t look old enough to have a child in college.” *Thinks well, it don’t crack* A bit less welcomed however […]

Filed Under: Disabled Parenting Tagged With: adult child, cane, daughter, disabled mom, muscular dystrophy, reflections, teenager

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