Happy 27th birthday Americans with Disabilities Act (ADA)! Because of you, my daughter, who shares my orthopedic disability, is growing up in a world where having a disability is a less isolating experience. Because of the ADA, we both can navigate our local community or a big city in our wheelchairs. Because of the ADA, […]
Mother and Daughter – Same Disability, Different Experiences
Even though I am 52 years old, I do not think I have ever spent so much time pondering disability issues as I have since Emily, my daughter, started this blog. The conversations we have had before, during, and after she writes her posts have been illuminating and have further reinforced how her experiences growing […]
Living Life One Step at a Time with the Help of some Clever “Handi-Hacks”
Seems like everyone is counting their steps these days as gizmos like Fitbit are all the rage. Because my daughter and I share a rare orthopedic disorder, Larsen Syndrome, we have many limitations in our upper and lower extremities that greatly impact our daily “steps.” Emily is a full time wheelchair user and I’m an […]
Figuring Out Life Hacks as a Disabled Parent
In 1991, my husband Marc and I brought our newborn baby girl home when she was 9 days old. At the time, we lived in an apartment with several steps to enter. This was just the first of many challenges I had to navigate as a disabled parent. I was born with Larsen’s Syndrome (LS), […]