This is it, the first time in 27 years for us. A year with no back-to-school rushes, no watching for sales, no picking out school clothes or visiting several stores to find the perfect backpack. There will be no lunches to pack and no waiting for vans to arrive. My youngest graduated in May, so […]
adult child
Figuring Out Life Hacks as a Disabled Parent
In 1991, my husband Marc and I brought our newborn baby girl home when she was 9 days old. At the time, we lived in an apartment with several steps to enter. This was just the first of many challenges I had to navigate as a disabled parent. I was born with Larsen’s Syndrome (LS), […]
Reflections From Parenting With a Disability
On a recent visit to the doc’s office that coincided same week my daughter returned to school, I welcomed verbiage bestowed upon me that included the following: “You lost 2 lbs, you have such white teeth, you don’t look old enough to have a child in college.” *Thinks well, it don’t crack* A bit less welcomed however […]