It has been an emotional week. On Wednesday, I went to my 4-year-old daughter’s preschool to talk to three of the classrooms about my disability. I’ve done this before when my son was in preschool. It went pretty well – my daughter accompanied me to … Read More about Why I Can’t Hold Other People’s Babies
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Mindfulness In Chronic Illness
Throughout my childhood and early adulthood, I never gave much thought to mindfulness. Even during my short foray into Soto Zen Buddhism in my late teens, staying present, being aware of my body, emotions and mentality didn’t seem like something I … Read More about Mindfulness In Chronic Illness
The “Mommy Guilt” When You Have a Child With a Rare Disease
Emergencies in my baby girl’s life were something of a biweekly event. Starting at about two months of age, I rushed my daughter to the Children’s ER often for gastric issues. These episodes consisted of her not being able to keep formula/food down, … Read More about The “Mommy Guilt” When You Have a Child With a Rare Disease
Remembering Carrie Ann Lucas
On Sunday, the disability community lost Carrie Ann Lucas, one of its fiercest members, and I lost a mentor, colleague, and above all, dear friend. Carrie Ann was a disabled mother, activist, and attorney. Carrie Ann died because of a broken … Read More about Remembering Carrie Ann Lucas