This year the ADA, which was designed to give equal access to the disabled, turns 30. Yet still, we live in a segregated society. As a person with a disability, where I live is not decided by my choice as an American but instead by the state and federal government when they decide which communities […]
disabled mom
Growing up with the ADA
The Americans with Disabilities Act was- and is- a revolutionary piece of legislation. It has impacted my life and the lives of others since its inception. I barely remember what life was like before the ADA, which was signed the year I turned eight. I recently had the opportunity to watch Crip Camp, and it […]
How things change: Reflections from a disabled mom about the holidays
Everything was difficult for me as a disabled mom, and I say it that way now looking back as I marvel at how I survived raising kids in a nondisabled world before access to technology afforded us some of the small luxuries we enjoy now, and before disabled moms were as visible as they seem […]
The 12 reasons why I (a mom with a disability) need elves!
I love the Holidays! I can not contain my smile when I think about them. Really any excuse to give gifts (no matter how small), cook yummy food and get together with friends and family. I love the feeling of building excitement, the day when I start getting to give the gifts I have worked […]
5 Steps to Hope
As a parent, my children luckily have not had very many occasions where they have to go to the hospital, nevermind stay overnight. I can only recall twice that my younger son has had to stay one night in the hospital. I never had to bring my older son for an overnight. I know I […]
Not in Spite of Me, Because of Me
I would like to say that having a disability and being a mother, are two unrelated characteristics about me. Unfortunately, just like all other facets of my life, my role as a mother is directly affected by FA (my disease). Some aspects of my parenting style are the same as they would be, but even […]
Mindfulness In Chronic Illness
Throughout my childhood and early adulthood, I never gave much thought to mindfulness. Even during my short foray into Soto Zen Buddhism in my late teens, staying present, being aware of my body, emotions and mentality didn’t seem like something I should give much import to. All that changed, however, at age 28. I was […]
The “Mommy Guilt” When You Have a Child With a Rare Disease
Emergencies in my baby girl’s life were something of a biweekly event. Starting at about two months of age, I rushed my daughter to the Children’s ER often for gastric issues. These episodes consisted of her not being able to keep formula/food down, refusing to eat and screaming in pain that could not be comforted. […]
Remembering Carrie Ann Lucas
On Sunday, the disability community lost Carrie Ann Lucas, one of its fiercest members, and I lost a mentor, colleague, and above all, dear friend. Carrie Ann was a disabled mother, activist, and attorney. Carrie Ann died because of a broken health care system that does not value the lives of disabled people. Over the […]
DPP Celebrates the Life of Carrie Ann Lucas
The Disabled Parenting Project (DPP) joins the disability community in mourning the loss of Carrie Ann Lucas of Windsor, Colorado. Carrie was the dedicated mother of Heather, Asiza, Adrianne, and Anthony. A disabled mother and fierce advocate, Carrie devoted much of her life to disability rights advocacy, especially fighting for the rights of parents with […]