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Disabled Parenting Project

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You are here: Home / Archives for disabled child

disabled child

The “Mommy Guilt” When You Have a Child With a Rare Disease

March 11, 2019 by Lyllyan Blare 1 Comment

The “Mommy Guilt” When You Have a Child With a Rare Disease

Emergencies in my baby girl’s life were something of a biweekly event. Starting at about two months of age, I rushed my daughter to the Children’s ER often for gastric issues. These episodes consisted of her not being able to keep formula/food down, refusing to eat and screaming in pain that could not be comforted. […]

Filed Under: Disabled Parenting Tagged With: disabled child, disabled mom, healthcare, school age child

My Son’s Disability Taught Me to Be Proud of My Own Disability

August 16, 2018 by Anna Zivarts Leave a Comment

My Son’s Disability Taught Me to Be Proud of My Own Disability

This blog first appeared at Rooted in Rights and is being cross-posted with permission. When I was born, the doctors told my parents I was blind. That was the first line of my college application essay and the narrative starting point of my life. My parents took me to the doctor because my eyes were […]

Filed Under: Disabled Parenting Tagged With: disabled child, disabled mom, Pride, son

Everything is a Process: Musings from a Mother with a Disability

February 2, 2018 by Jennifer Senda Leave a Comment

Everything is a Process: Musings from a Mother with a Disability

This is something I am repeating to myself constantly. It has become my mantra. Parenting is a long walk with children, featuring endless questions, lots of laughter and tears, and sometimes, if I’m being honest, anger is present. The munchkin is a fiery ball of energy, and I have to strategize when parenting. My expectations […]

Filed Under: Disabled Parenting Tagged With: disabled child, disabled mom, reflections, son

Back to School When School is Done

September 14, 2017 by Carla Charter Leave a Comment

Back to School When School is Done

This is it, the first time in 27 years for us. A year with no back-to-school rushes, no watching for sales, no picking out school clothes or visiting several stores to find the perfect backpack. There will be no lunches to pack and no waiting for vans to arrive. My youngest graduated in May, so […]

Filed Under: Disabled Parenting Tagged With: adult child, disabled child, disabled mom, reflections, school

Happy 27th Birthday to the ADA from a Disabled Mom!

July 26, 2017 by Ellen Ladau 2 Comments

Happy 27th Birthday to the ADA from a Disabled Mom!

Happy 27th birthday Americans with Disabilities Act (ADA)! Because of you, my daughter, who shares my orthopedic disability, is growing up in a world where having a disability is a less isolating experience.  Because of the ADA, we both can navigate our local community or a big city in our wheelchairs.  Because of the ADA, […]

Filed Under: Disabled Parenting Tagged With: accessibility, ADA, disabled child, disabled mom

I am not a Superhero

May 2, 2017 by Jennifer Senda Leave a Comment

I am not a Superhero

I really, REALLY want to be! I want to be able to do everything at once, and though I know it isn’t quite logical, I’m disappointed whenever I realize my aspirations to be a supermom are impossible. I have even cried tears of frustration because of it. I love pop culture! I love movies! I will […]

Filed Under: Disabled Parenting Tagged With: disabled child, disabled mom, reflections, society

No One is an Island

July 21, 2016 by Carla Charter 1 Comment

No One is an Island

“No man is an island unto themselves entire of itself; every man is a piece of the continent, a part of the main” -John Donne Never was the above statement truer than when it is applied to a family with disabilities. I am a disabled parent with a genetic condition which has also been passed […]

Filed Under: Disabled Parenting Tagged With: ADA, caregiving, disabled child, disabled mom

Figuring Out Life Hacks as a Disabled Parent

May 25, 2016 by Ellen Ladau 3 Comments

Figuring Out Life Hacks as a Disabled Parent

In 1991, my husband Marc and I brought our newborn baby girl home when she was 9 days old. At the time, we lived in an apartment with several steps to enter.  This was just the first of many challenges I had to navigate as a disabled parent. I was born with Larsen’s Syndrome (LS), […]

Filed Under: Disabled Parenting Tagged With: accessibility, adapting, adult child, daughter, disabled child, disabled mom

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