My son is nearly three and loves to cook, especially for friends. It’s not uncommon for him to wake me up in the morning, pull the pillows and blankets off the bed and declare we are having a party. “Mommy get up, get up! Friends are coming! Let’s make muffin cakes.” With muscles not yet […]
muscular dystrophy
Making it Work: Caring for an Infant as a Mom with SMA
I certainly thought I knew myself as a parent, before I was one (ha!), better than I did. This has by far been the greatest, best, most difficult and even most anxious time of my life as a settle in. My current anxiety is about Gia becoming mobile. I already have help and am never […]
Unique…Like Any Other Mother
I tend to not sugar coat things. I have that sass that can be blunt and I get stuck in my head a lot by thinking out every detail. I write to share this because I know I’m not the only parent experiencing life with a disability, and because I’ve realized how ignorant our society […]
Diving in, Wheelchair First
Dreaming of becoming a parent chooses you. You don’t get to choose the journey. With Spinal Muscular Atrophy (SMA) and using a power wheelchair while requiring care for my basic needs, many would think being a parent wouldn’t be a dream I’d have, let alone pursue. I am a mother to a nearly 5 month-old […]
Reflections From Parenting With a Disability
On a recent visit to the doc’s office that coincided same week my daughter returned to school, I welcomed verbiage bestowed upon me that included the following: “You lost 2 lbs, you have such white teeth, you don’t look old enough to have a child in college.” *Thinks well, it don’t crack* A bit less welcomed however […]