I just recently joined disabled parenting looking for other parents with TBI. I’m afraid of forgetting as well. I take lots of pictures, write down sayings, paraphrase episodes of funny, scared, angry, etc… incidences. I know my memory is slowly deteriorating. There will be a time when I may not remember. My advise is, prepare them. I have found they are never too young to discuss my disabilities in age appropriate ways. They will comprehend it their own way and ask questions as they grow. Especially if you are honest and open with them from a child development standpoint. I hope this helps.
I know the last post was over 2yrs ago, but, this is a topic I find difficult as well. I am assuming we are discussing explaining to be our children how you became disabled. I find the process changes slightly with the age of your kids but it’s important to decide on your “story” and stay consistant and simple. I have learned the hard way to imagine your story as if your child were repeating it to a friend because they will. What you think are important details may get lost and completely misrepresent your disability. It can be a mess with their parents and friends. Anyway, trust me, they will ask for specifics as they process the information throughout their lifes and you should answer them. I have always believed the truth (age appropriately) is the best. Hope this helps